January 12, 2010 – 2016
Because of the growing importance of family caregiving in North America, Family Caregivers Unite! Amy MacFarlane of Recreational Respite and Dr. Gordon Atherley came together with a passion to strengthen links within the family caregiver communities. Family Caregivers Unite! host, Dr Gordon Atherley, says that family caregivers are giving more and more to healthcare systems, but they are not yet receiving all the support they need and merit. “Which is why they need ways to communicate among themselves, to share experiences, and to get the information they need to help their family members”, he says. Amy MacFarlane, Co-Creator of Family Caregivers Unite!’s says that connecting Family Caregivers Unite! more closely with family caregiver communities, locally, regionally, nationally and internationally is the next major step forward in family caregiving. “They (caregivers) should be helped to engage with each other and to make their voices heard with a new level of empowerment and advocacy for their roles, as caregivers”, she adds.
The Canadian Caregiver Coalition estimates that there are over 4 million family caregivers in Canada, though some estimates are higher. Family caregivers subsidize the healthcare systems though their unpaid efforts, by enabling family members to stay at home, and by providing care that is exhausting physically, psychologically and financially for many family caregivers. Thanks to North America’s aging cohorts, incurable diseases increasingly preoccupy healthcare system planners. For the care of incurable diseases the types of care delivered by healthcare systems are essential. But they are nonetheless insufficient: family caregivers constitute an increasingly necessary contribution to sufficiency of care. Some authorities hold that, without family caregivers, healthcare systems will be increasingly unable to cope with the challenges of the aging population.
December 2022, it is my pleasure to bring back this work to the public. This archive is dedicated to those in caregiving roles in hopes they will find information, resources and unique connections that support their individual experiences.